Cathy had a very good day today. Although she did not spend any time on the trach collar, Cathy spent over 12 hours sitting up in a chair. Cathy was relaxed and in good spirits for most of the day.
The transplant team met today and discussed Cathy's case. It was decided to not re-list Cathy at this time. Apparently there have been reports put in Cathy's 'chart' from some of the ICU nurses stating that Cathy has not been trying. (Boy am I ever happy that Cathy is out of the ICU!!!!). Dr. Saggar told Cathy that he stood up for her in the meeting, telling the other doctors that he did not believe this was the case. The bottom line for today is that Cathy is still not on the transplant list. Dr. Saggar had told Cathy that he would be back this evening to discuss the situation with both of us. I have delayed posting tonight's update hoping to have more information from Dr. Saggar. (No visit by this message's post time).
Cathy was happy to learn tonight that she weighs more now than what she has weighted since well before she came to the hospital. I know it is not polite for me to share her weight, so let's just say her weight is displayed in three digits (no, I am not counting the digits after the decimal point). Cathy says this is because of the good liquid diet she has been 'eating'.
2 comments:
Oh I certainly hope that what I am feeling toward those nurses is "righteous" anger. If not, please forgive me Lord. How can anyone who has spent anytime observing your "fight" say that you aren't trying!? This must be the Lord's way of delaying your re-listing for that perfect lung that is not quite ready for you. Try not to be discouraged Sweetie...you are still in the MOST capable and sovereign hands of all.
I love you!
BonBon
XOXOXOX
Boy, I would like to see if those nurses were in Cathy's position if they would then make notes that she is not trying! How dare they mess with some one's health like that! They are supposed to be helping, not keeping her from the very thing she needs! Grrr.... That was probably the reason Cathy got a room, so she would be away from those nurses and their notes! Continued prayers. You hang in there Cathy... we all know beyond a shadow of a doubt that you are trying! You show them girl!
Ted & Melody
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