The most significant thing about Cathy's day today was that nothing significant happened. Walking and being on the trach collar are now routine. Eating is also becoming routine, although Cathy is still dealing with a bit of the nausea. In spite of the nausea, Cathy has managed to put on another three pounds.
The discharge coordinators have begun talking to us about rehab facilities for Cathy. So far, of the three that have been mentioned with a bed available, two are on the other side of downtown LA (30 to 40 miles, and 90 minutes, further commuting each way). The one that is closer to Ventura (by only a few miles) does not look that appealing when I looked at the complaint and facility audit records on the California Department of Health Services web site (one of the ones on the other side of downtown did not look that great either). As of today, there were no beds available in any of the facilities that are in our back yard. There is a facility that the pulmonary doctors prefer out in the "Valley" (about the same distance from Ventura as UCLA), but there are no beds available at this facility either. This facility also has a better that average complaint and audit record. Cathy and I are both a little stressed about where she is going to end up.
Tomorrow the transplant committee meets again. We have been assurred that Cathy's case will be discussed again. I cannot see the logic of any doctor saying that Cathy is not ready for a transplant and yet she is ready to be moved into a rehab facility as a bridge to going home. If she is strong enough to not need the daily care of the medical and transplant teams, then she is strong enough to receive a transplant. (My opinion, but we all know I am biased).
2 comments:
Hi Guys,
Who would have ever thought that an uneventful day would bring such peace and such hope! Cathy I'm so thrilled that you are becoming less of a "prisoner" to your own body and are able to do things like getting out of bed and walking to the window!
The pending decision on being discharged to a rehab facility (not to mention whether or not you are relisted for transplant right away) is huge and I can imagine the stress you must be feeling. Don't forget that there's a Big Guy upstairs who is perfectly capable and trustworthy with those decisions and I encourage you to hand all that stress over to Him and trust Him with the outcome. He has plans to prosper you and not to harm you...who better to trust!? He rewards our trust, so reap those dividends!
I also pray that the nausea and headaches go away completely...and soon!
With love and hugs,
BonBon
XOXOXOXO
Good luck with the transplant committee's decision tomorrow!
Do not get too stressed, We are praying to God that a reputable rehab facility has a bed available for Cathy.
XOXOXOXO
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